After what has felt like an endless wait, I’ve started on biologics. If you remember from a few posts ago, biologics are meant to have the best chance at getting me into remission. I’ve had two IV treatments in the past four weeks, and have another treatment in a fortnight. After my fourth dose, my specialist team will reassess me to see whether there have been any clinical signs of improvement.
DonateLife Service Of Remembrance 2018
This past Sunday was Brisbane’s Annual Service of Remembrance, held by DonateLife Australia. These events are an opportunity for transplant recipients to show their respect and gratitude for donors and their families, who’ve ultimately saved our lives. It was a moving service, with donor families and transplant recipients telling their stories of survival and resilience in the face of truly tragic circumstances. Some of these people have gone through unimaginable pain and suffering, and still manage to give so much positivity back to the world. It’s honestly incredible.
Priorities
Looking after yourself can be difficult when you have conflicting priorities. I am usually someone who enjoys my independence, and with it the freedom to make the choices that create my future. Sometimes however, making the right choices at the right times when there are certain influences outside of your control can be harder than you might expect.
The Unknown
It’s been a week since I was discharged from hospital, and I’m not really sure much has improved. I had my specialist appointment on Tuesday, and the increased steroids don’t appear to have dropped my blood count, which is great, but I’m not certain it’s doing much to help either. In the last week, it’s probably getting slightly more abdominal pain which has caused me the most concern.
Home Sweet Ho…spital
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It’s funny how your opinion on something can change the closer it gets to becoming a reality. I don’t just mean the idea of a good night’s sleep until you realise there’s bulk Netflix to watch, but big stuff too. The ones that remind you what you might have taken for granted. Like moving overseas, changing jobs, or having surgery. But more on that in a minute.